I haven't been on here for a while so please bear with me.
Apparently, I have a form of dementia, which I will deny until I see the actual films they took of my frontal lobe (where you get those headaches, lol). They were checking up on my seizure activity, which seems to be nil thank God, and found redness on the screen in large amounts and THAT is not good. Also, some minor "black" spots, which indicate either TIA's (mini-tiny-tiny strokes) or the start of Lou Gherig's, also called ALS. That being said, I have reached out to some, hoping for the miracle that saved my life five years ago the 23rd of February. Hard to believe it's been that long? Wow.
My Aunt died of ALS in 2009, my sister from the same in 2011. It is no surprise to me if I have it. BUT--I will not give up. I never do. But I WILL do the "practical" thing as I always do.
I'm tired. Really tired. Of doctors, health issues, surgeries. Sick to my fucking death of it all. And so what lies ahead...it is what it is.
I get to look at the actual films tomorrow. We shall see. Having watched both magnetic tests (CT, MRI's) come into being, I know what to look for. Being that my PCP right now is not an MD but an ARNP, I shall be looking VERY closely at these films. VERY.
This will simply serve as an easier way to journal, since writing is harder than typing anymore, lol. I find that funny as hell and never ever thought I'd be saying that! But it's true. Here's the laundry list I'm working to overcome-- after all, life is full of challenges and it's how we get through that matters...
Fibromyalgia
Psoriatic arthritis
Narcolepsy
ADHD
7 herniated discs
Isn't that enough without adding ALS????????? This is one of those times I wanted to just yell at God, "REALLY????"
I'm so sick of this that I'm about to consent to the neck surgery and the mouth surgery just to get past it. I'm sick of being sick and I intend, with God's help, to GET BETTER, dammit.
Oh, and let's add filing bankruptcy for the second time in ten years. Lovely. Sick of that garbage too, but I WILL overcome. No more leaning on my friends or the wrong friends. No more excuses as my son says, so often now. God, I am so proud of my kids, so grateful I get to be their mom, at least in some measure. More to follow and thank you for listening...well, reading. Whatever. Much love to my few followers. :D
Apparently, I have a form of dementia, which I will deny until I see the actual films they took of my frontal lobe (where you get those headaches, lol). They were checking up on my seizure activity, which seems to be nil thank God, and found redness on the screen in large amounts and THAT is not good. Also, some minor "black" spots, which indicate either TIA's (mini-tiny-tiny strokes) or the start of Lou Gherig's, also called ALS. That being said, I have reached out to some, hoping for the miracle that saved my life five years ago the 23rd of February. Hard to believe it's been that long? Wow.
My Aunt died of ALS in 2009, my sister from the same in 2011. It is no surprise to me if I have it. BUT--I will not give up. I never do. But I WILL do the "practical" thing as I always do.
I'm tired. Really tired. Of doctors, health issues, surgeries. Sick to my fucking death of it all. And so what lies ahead...it is what it is.
I get to look at the actual films tomorrow. We shall see. Having watched both magnetic tests (CT, MRI's) come into being, I know what to look for. Being that my PCP right now is not an MD but an ARNP, I shall be looking VERY closely at these films. VERY.
This will simply serve as an easier way to journal, since writing is harder than typing anymore, lol. I find that funny as hell and never ever thought I'd be saying that! But it's true. Here's the laundry list I'm working to overcome-- after all, life is full of challenges and it's how we get through that matters...
Fibromyalgia
Psoriatic arthritis
Narcolepsy
ADHD
7 herniated discs
Isn't that enough without adding ALS????????? This is one of those times I wanted to just yell at God, "REALLY????"
I'm so sick of this that I'm about to consent to the neck surgery and the mouth surgery just to get past it. I'm sick of being sick and I intend, with God's help, to GET BETTER, dammit.
Oh, and let's add filing bankruptcy for the second time in ten years. Lovely. Sick of that garbage too, but I WILL overcome. No more leaning on my friends or the wrong friends. No more excuses as my son says, so often now. God, I am so proud of my kids, so grateful I get to be their mom, at least in some measure. More to follow and thank you for listening...well, reading. Whatever. Much love to my few followers. :D
